Hemoglobin dropped

[Patricia Shull]

Hospital called me. My hemoglobin went from 7.5 to 6.6 in 2 weeks. Get my first transfusion tomorrow. My 5th Vidaza cycle is in two weeks and still hasn’t worked.

Am so exhausted that have to lay down for 10-15 minutes every time I try to do something as my heart just pounds. And now I get light headed too.

Am I on a slippery slope or do I have a chance? Is there anything else out there that helps?

As if cancer isn’t enough, this Covid19 virus is like a nightmare.

[Cliff Potenza]

Patricia,
Sorry to here of your “dilemma” but it is not a death sentence. I assume you have been diagnosed with MDS. I has had 16 months of Vidaza treatment and occasionally have low enough counts to require blood/platelet transfusions. My body has adjusted to the low counts and I have very little fatigue. Give the Vidaza a chance to work. If you haven’t yet, I would find a Center of Excellence near you and get another opinion and have a speciaist to refer to as you continue with treatments.

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