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High Risk MDS/ AML

HomeForumsPatient Message BoardHigh Risk MDS/ AML


This topic contains 3 replies, has 4 voices, and was last updated by  kathleen 9 months, 4 weeks ago.

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  • #32943

    Shaveta Jindal

    My father from India has been diagnosed with intermediate risk MDS in February 2016. The doctor there suggested not to start the treatment like chemo and suggested to go with the flow. He was fine till he visited USA. After the visit, his blasts increased from 5% to 35% and now he is in High risk or AML category. The doctor has prescribed him decitabine 40 mg for 5 days a month. I want to know if this is reliable and should be taken forward. The transplantation is out of question as he does’nt have a healthy sibling who can donate bone marrow. He is 62 years old. Please let me what he will be dealing with and what is life expanatancy? He feels fine and energetic otherwise.



    Site Admin

    Dear Shaveta, Thank you for your post. I know this is a difficult situation for you and I would recommend that you take your father to one of our Centers of Excellence in MDS for a second opinion. He should be very carefully assessed before undergoing any treatment. Benefits versus risk analysis should be done with any treatment.

    In India we have two MDS Centers of Excellence: Tata Medical Centre in Kolkata and Tata Memorial Hospital in Mumbai. Following is a link to our Centers of Excellence worldwide We also have a wonderful information program called the Building Blocks of Hope which we can send you via postal mail. If this is something that you would be interested in, please forward your mailing address to In the meantime, you can also view this video I hope this information helps.


    jenny singh

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    Sheveta, they can now do half-match transplants with children as donors at some hospitals and also using cord blood. In the US there are non related donors, is this a possibility where you are? please consider moderator’s suggestions.

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