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How long Has everyone Lasted?

Home forums Patient Message Board How long Has everyone Lasted?

Viewing 6 posts - 31 through 36 (of 36 total)
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  • #4628
    Bec
    Member

    Hey all, I just updated my profile at bottom. Dad is doing great and just hit year 7. He is doing better today than he was when he was first diagnoised. WE contribute it to God, positive attitude, still working and moving, low dose of steroids and procrit, and prayer.

    Sometimes I hesitate to post because Dad is doing so well. I do not want to sound proud or “braggy”. But I hope his progress will help someone else live better and longer. AND to never give up hope. Dads tx have been needed every week in the past. He is now going on week 17 without a tx. He has to go visit his tx nurses because they miss him HA

    We feel very blessed and send our prayers to all.
    I pray for the whole web site.
    Bec

    #4629
    Russ P.
    Member

    Bec,
    Glad to hear your Dad is doing well.
    Let us know the type and dosage of the steroid he’s on. I always seemed to be helped a bit with prednisone but hesitated to stay on it.
    Russ

    #4630
    Bec
    Member

    Hey Russ, I called Dad and he is on 5 mg of predisone. The reason the Dr. decided to try it was because he noticed that everytime he got pnemonia they put him on steroids and his counts went up. Now he takes it every day. Seems to work for him but remember we are all different. My Dad has no blast that we know of. He also still takes 60,000 mg of procrit. Today he went to Dr. and hgb went up to 9.5. His other counts were good also. (some low, some high but overall good) He has now gone 16 weeks without tx. WE are celebrating…
    I hope this helps. Dad did not like idea of steroids all the time but the alternative was not desirable either. His Dr. is amazed and really does not what is going on. If you read my past post, you will see how sick he has been.

    I keep praying for cure..
    Bec

    #4631
    Russ P.
    Member

    Bec, Thanks.
    I too pray for the whole forum.
    Blessings,
    Russ

    #4632
    choijk
    Member

    Wow predisone…. Bec I am really happy for you and your dad! What joy! Please keep us updated! This really gives me great hope, esp tonight because tomorrow we have a f/u appt with the doc. I really hate these kinds of nights because I am always so scared to hear bad news =(

    #4633
    annie-anne
    Member

    Hi Julie,
    Annie-Anne… Age 73, Dx 2001, MDS only tho I was anemic for at least six years previous. My hemotologist told me he knew of people living for 17 years, and I would also.Rx oral iron only. DX. MDS RAEB 5Q/chromo 9. blasts 10% in Jan. 2007 and started Dacogen approx 5days per round, monthly. Over past ten mos.. some procrt, Aranespe,12 units packed cells, and a bout with Neutropenia. I’ve done pretty well and start my 11th round of chemo tomorrow. Also, I give myself Nupergen inj. for two weeks post chemo. Good luck with your database, we are all different!!!!!!!

Viewing 6 posts - 31 through 36 (of 36 total)

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