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How long Has everyone Lasted?

This topic has 35 replies, 1 voice, and was last updated 16 years, 6 months ago by annie-anne.

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October 25, 2007 at 3:00 pm #4628

Bec
Member

Hey all, I just updated my profile at bottom. Dad is doing great and just hit year 7. He is doing better today than he was when he was first diagnoised. WE contribute it to God, positive attitude, still working and moving, low dose of steroids and procrit, and prayer.

Sometimes I hesitate to post because Dad is doing so well. I do not want to sound proud or “braggy”. But I hope his progress will help someone else live better and longer. AND to never give up hope. Dads tx have been needed every week in the past. He is now going on week 17 without a tx. He has to go visit his tx nurses because they miss him HA

We feel very blessed and send our prayers to all.
I pray for the whole web site.
Bec

October 25, 2007 at 10:10 pm #4629

Russ P.
Member

Bec,
Glad to hear your Dad is doing well.
Let us know the type and dosage of the steroid he’s on. I always seemed to be helped a bit with prednisone but hesitated to stay on it.
Russ

October 25, 2007 at 11:27 pm #4630

Bec
Member

Hey Russ, I called Dad and he is on 5 mg of predisone. The reason the Dr. decided to try it was because he noticed that everytime he got pnemonia they put him on steroids and his counts went up. Now he takes it every day. Seems to work for him but remember we are all different. My Dad has no blast that we know of. He also still takes 60,000 mg of procrit. Today he went to Dr. and hgb went up to 9.5. His other counts were good also. (some low, some high but overall good) He has now gone 16 weeks without tx. WE are celebrating…
I hope this helps. Dad did not like idea of steroids all the time but the alternative was not desirable either. His Dr. is amazed and really does not what is going on. If you read my past post, you will see how sick he has been.

I keep praying for cure..
Bec

October 26, 2007 at 1:07 am #4631

Russ P.
Member

Bec, Thanks.
I too pray for the whole forum.
Blessings,
Russ

October 26, 2007 at 5:54 am #4632

choijk
Member

Wow predisone…. Bec I am really happy for you and your dad! What joy! Please keep us updated! This really gives me great hope, esp tonight because tomorrow we have a f/u appt with the doc. I really hate these kinds of nights because I am always so scared to hear bad news =(

October 29, 2007 at 3:08 am #4633

annie-anne
Member

Hi Julie,
Annie-Anne… Age 73, Dx 2001, MDS only tho I was anemic for at least six years previous. My hemotologist told me he knew of people living for 17 years, and I would also.Rx oral iron only. DX. MDS RAEB 5Q/chromo 9. blasts 10% in Jan. 2007 and started Dacogen approx 5days per round, monthly. Over past ten mos.. some procrt, Aranespe,12 units packed cells, and a bout with Neutropenia. I’ve done pretty well and start my 11th round of chemo tomorrow. Also, I give myself Nupergen inj. for two weeks post chemo. Good luck with your database, we are all different!!!!!!!
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