MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Seeking others who have or had CCUS

Home forums Patient Message Board Seeking others who have or had CCUS

Tagged: 

Viewing 1 post (of 1 total)
  • Author
    Posts
  • #50692
    Erin
    Participant

    Hello all. I’m 40 yrs old this Friday and was diagnosed with CCUS (clonal cytopenia of undetermined significance) in December of 2019. My pathology report said my results were highly concerning for an evolving myeloid neoplasm. I know people with CCUS have around a 75% chance of progressing to MDS or some other myeloid cancer. I have read about my BMB and blood test results and they are all associated with cancer. It would seem that this is the beginning of something and I simply don’t meet the specific criteria for MDS or any other myeloid neoplasm yet.

    My question is, is there anyone else out there who started out like me, with CCUS, but progressed to MDS? Or who currently has CCUS and is being monitored? If so, I’m hoping you might be willing to share your experience. I know that focusing on an uncertain future is not helpful but I’m having trouble letting go/moving on. Thanks in advance!

    • This topic was modified 1 month, 2 weeks ago by Erin.
Viewing 1 post (of 1 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert