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How to tell if Vidaza has stopped working

Home forums Patient Message Board How to tell if Vidaza has stopped working

This topic contains 1 reply, has 2 voices, and was last updated by  mdsfound 1 week, 3 days ago.

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  • #48664

    Aureta
    Participant

    Have been on Vidaza for six months. My MDS only involves my hemoglobin. Have been holding count at 8.5 with no transfusion since February. My hemoglobin count went down to 7.6 n doctor doesn’t know if it’s because drug isn’t working or if my body needs rest from drug. She suggested going off Vidaza for a month to see how blood looks then but am concerned about going off of it.

    #48678

    mdsfound
    Moderator

    I know this is a difficult situation for you and I would recommend that you go to one of our Centers of Excellence in MDS for a second opinion. You should be very carefully assessed before undergoing any treatment. Benefits versus risk analysis should be done with any treatment.

    Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. I hope this helps.

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