Inqovi

[Lynn Minnis]

What are the next steps or treatment options when Inqovi stops working? I was doing very well on it for 26 doses and it suddently stopped working and all my numbers took a nosedive. Where do I go from here?

[Lynn Minnis]

My MDS journey has reached an end. I was initially diagnosed in Nov. 2018 and started on Revlimid. When that was no longer effective, I started Inqovi every 28 days and went to every 5 weeks in late 2022. My last dose was March of 2023 and my numbers tanked at my April check-in. A bone marrow biopsy revealed Acute Myeloid Leukemia and the prognosis is not very promising. Still in the testing phase to find an appropriate treatment. Hoping to hear more this week.
Thanks for answering my post. Good Luck with your treatment.

[Michael Collins]

I started Inqovi in August of 2022. My first three months were both Inqovi and Venetoclax which clobbered my blood counts. Took three months for my platelets to recover. Cycle four to cycle seven has been Inqovi only which I just completed. I also wonder what happens after Inqovi stops working. I will ask my doctor next Friday. MD Anderson is prescribing my treatment as I live in Indianapolis and my hospital is affiliated with them. Haven’t seen very many posts about Inqovi since it is a new drug. Also follow Facebook sites CMML Friends and Fight Myelodysplastic Syndrome. Did see a post recently about some one who had been on Inqovi for over four years and it was starting to wane so must of been part of the original clinical trial.

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