I started Decitabine Cedazuadine on November 20 2020. No problem taking the drug along with a anti nausea medication accept extreme constipation but Miralax fixed that. Then 2 weeks later needed 2 pints of blood, 1 unit of platlets and my white blood cells and neutrophils went to zero. I remain with a suppressed immune system after taking injections for white blood cells got me up to 00.02 neutrophils.
I am very ill mouth sores all over can’t walk more than 10 steps out of breath. Headaches, gas pains, burning stomach, mouth sores, sore throat and hoarness. I am due to go for Cycle 2 on Dec 17. So scared I feel I have almost died two times now. Fear of my throat totally closing up from the throat sore. I do not know what to do very confused.
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