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INQOVI MDS Patients – We Need Your Help!

Home Demo forums Patient Message Board INQOVI MDS Patients – We Need Your Help!

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  • #53737
    Site Admin
    Moderator

    If you are an MDS patient currently on INQOVI the once‑daily oral hypomethylating agent treatment, the MDS Foundation would like to hear from you. Please email ahassan@mds-foundation.org to learn more.

    #53801
    Linda Pelletier
    Participant

    I started Decitabine Cedazuadine on November 20 2020. No problem taking the drug along with a anti nausea medication accept extreme constipation but Miralax fixed that. Then 2 weeks later needed 2 pints of blood, 1 unit of platlets and my white blood cells and neutrophils went to zero. I remain with a suppressed immune system after taking injections for white blood cells got me up to 00.02 neutrophils.
    I am very ill mouth sores all over can’t walk more than 10 steps out of breath. Headaches, gas pains, burning stomach, mouth sores, sore throat and hoarness. I am due to go for Cycle 2 on Dec 17. So scared I feel I have almost died two times now. Fear of my throat totally closing up from the throat sore. I do not know what to do very confused.

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