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Inquovi

This topic has 2 replies, 3 voices, and was last updated 3 months, 3 weeks ago by Michael Collins.

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January 5, 2024 at 11:46 am #66815

Paul Altesleben
Participant

I am also wondering if anyone had any experience with the drug Inquovi? My doctor is wanting to prescribe this for me. Thank you.

January 5, 2024 at 1:30 pm #66816

Michele Polland
Participant

Paul, I’ve been taking Inqovi for the last 6 months. Prior to that I received infusions of first Vidaza and then Dacogen for two years. I have an unusual allergy to all of these medications that causes intense itching. I now take Prednisone on the days I received infusions and now Inqovi to deal with the itching.

The Inqovi has been wonderful. The pills are sent to my home by the CVS Speciality Pharmacy. No need to go to an infusion center. My bloodwork is looking good (for me). Wish my hematologist offered this option in the beginning of my MDS journey in February 2020. Doctors in cancer infusion centers don’t make money off the pills I guess that’s why it’s not offered.

Good luck! Hope it works for you.

January 9, 2024 at 9:32 am #66821

Michael Collins
Participant

I initially started on Inqovi and Venetoclax around 18 months ago. I did three rounds of those two drugs and my blood counts totally crashed. Took two months for my numbers to start to improve. Then our son brought covid home. Took another five weeks off with no treatment. So I went three months until I started round four of Inqovi only. Did rounds four through eleven of Inqovi only. Needed a platelet transfusion each time. Switched to Dacogen three months ago to see if I needed less or none platelet transfusions. Didn’t need a transfusion if they did three days of treatment but needed one with four days of treatment. Doctor said we will do six rounds of Dacogen and then see if I am in remission or not and take a break to see how my numbers improve. I did Inqovi in pill form. Minimal side effects – primarily a little nausea and fatigue.
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