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iron overload, nonhereditary or transfusion related

Home Demo forums Patient Message Board iron overload, nonhereditary or transfusion related

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    Philip Fallacaro

    81 years old developed low risk MDS in 2016. Started procrit injections every two to three weeks about 3 years ago. It was keeping my hemoglobin around 10.5, whites cells near low normal and platelets near low normal. Unexpectedly two years ago I was hospitalized for extreme weakness, weight loss and fatigue and found to have Adrenal Insufficiency (adrenal glands not producing cortisol) requiring modest dosage of 25mg hydrocortisone for cortisol replacement. Was doing ok for a while but tested having high serum iron, high ferritin and high saturation levels, iron detected in my liver, but not causing damage. My platelets dropped from around 120 to 75 +- 10. Concerned about the toxic effects of iron over load, my doctor prescribed chelating pills, Jadenu (deferaserox) to reduce iron absorption. But I cant seem to tolerate this iron Chelating drug, which has serious side effects.
    Has anyone with MDS and anemia having issues with IRON OVERLOAD, and how are you dealing with it medically?

    Sherry Pratt

    Hi Phil, Sherry Pratt here. I too had side effects from chelating drugs. I now take Lactoferrin. It was recommended by my naturopath at my treatment center. It brings the iron level down slowly but surely with no adverse effects.

    I get them from Life Extension on line.

    • This reply was modified 1 week, 4 days ago by Sherry Pratt.
    Philip Fallacaro

    I just noticed your response on my laptop mail account. I don’t get it on my iPhone anymore and can’t fix it. Anyway I was happy to get the info regarding recuction of iron in a safe way. Is LIFE EXTENSION A WEBSITE? I havent tried to search it yet. I assume the medication is over the counter not requiring a prescription? I will check and try to find where I can buy some and try it. thank you Sherry for noticing this post and remembering me. Phil

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