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It's happening again…

Home forums Patient Message Board It's happening again…

This topic contains 35 replies, has 1 voice, and was last updated by  Alice S 12 years, 4 months ago.

Viewing 15 posts - 16 through 30 (of 36 total)
  • Author
    Posts
  • #16654

    patti
    Member

    Butch,

    Please keep us all posted. Praying that the BMB gives you all a clearer view of what’s going on.

    Patti

    #16655

    ButchL
    Participant

    She was at 7,000 and after the platelets went to 51,000. That was a good bag! They did the bmb and will have some results on Friday. They don’t sound as optimistic today as they did Monday. They are going to go ahead and get her sister tested to see if she is a match in case we need it. They even mentioned today that it could be MDS or AA. We will see…….

    #16656

    DonUK
    Member

    Hi Butch,

    Haven’t looked at the board for ages then see this!

    I’m so sorry, none of you deserve this. I hope it’s something easily treatable.

    Take care,
    Don

    #16657

    ButchL
    Participant

    Today’s visit brings the bad news. They say it is severe aplastic anemia. They want to do a transplant ASAP. On Tuesday we will get the ball rolling and get her younger sister tested and go from there…….

    #16658

    sdrake
    Member

    Butch,

    Please know that many prayers are with Ashley, you, and your family.

    God bless,
    Shari

    #16659

    Jimbob
    Member

    Butch,
    We will keep Ashley and your family in our prayers. I wish there was more that we could do.
    Jim

    #16660

    Carrie
    Member

    Butch,

    I am so sorry to hear the news. I don’t know much about AA but I hope that it’s treatable. She’s so young.

    I’m here if you need me.
    Carrie

    #16661

    Alice S
    Member

    Butch, This is not really fair. Will pray for both of you. Ashley is lucky to have you.
    Alice

    #16662

    ButchL
    Participant

    Today her platelets were at 8,000. Another transfusion……

    #16663

    gemloyear
    Member

    Butch, I’m so sorry that Ashley is having to go through this. I pray that a donor is found soon and that all will go well for her.
    God Bless, Ellie

    #16664

    ButchL
    Participant

    Ashley has a sister Casey. She is 16. They are typing her today but they said they may not use her even if a match due to both Kelly and Ashley having issues. There is no telling if Casey is at risk at this point. She is at Roswell now, we’ll know more later……

    They “typed” Casey today. We’ll have the results Friday if she is a match. They are also doing a preliminary search for an unrelated donor as well. Platelets were at 30,000 today so no transfusions. Ashley is also meeting with someone that specializes in natural medicine as well this week.

    #16665

    willie
    Member

    Butch My thoughts are with the both of you. I hope that things will go good for Ashley. Willie

    #16666

    patti
    Member

    Butch,

    Make sure that whomever Ashley is talking to about natural medicine is a specialist in dealing with cancer patients specifically. I am finding that “general practice” or “family practice” naturapaths do not have enough experience with disease to understand how to treat it. Family practice ND’s generally treat children and families for regular day to day illnesses and really lack the expertise needed for cancer treatments. Even if they don’t know what AA is, a cancer specialist knows where to go to find the right answers. Hang in there.

    patti

    #16667

    ButchL
    Participant

    Ashley is at Roswell now. Her younger sister is not a match. They do however have 3 young girls tested recently. They are all a 10 out of 10 match according to my father in law who is there. They have to be tracked down and checked a little further to pick the best one. It will take another 4 – 6 weeks. But at least it looks good at this point.

    Ashley is getting red blood and platelet transfusions today as her counts tanked…….

    #16668

    shirlsgirl
    Member

    Hi Butch,

    Just thinking about Ashley…sorry about her counts. Sure hope she’s feeling better after her transfusions. Hey, sounds encouraging with 3 girls with a 10 out of 10 match. Thanks for the update. Sending positive vibes..

    Jody

Viewing 15 posts - 16 through 30 (of 36 total)

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