MDS is a bone marrow failure disorder

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Just found out!

HomeForumsPatient Message BoardJust found out!

This topic contains 5 replies, has 3 voices, and was last updated by  bobderek 7 months, 1 week ago.

Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • #31652

    Hans Keller
    Participant

    I am a 68 year old male, in Toronto, Canada. I have just been diagnosed with MDS, have been given 3 options, on do nothing and maintain life through transfusions, two have treatment with the latest drugs available or attempt a bone marrow transplant with a compatible donor. Would like some input regarding these options.

    #31654

    Site Admin
    Moderator

    Dear Hans, I know this is a difficult situation for you and I would recommend that you go to one of our Centers of Excellence in MDS for a second opinion. You should be very carefully assessed before undergoing any treatment. Benefits versus risk analysis should be done with any treatment. Some MDS patients even seek third and fourth opinions.

    Following is a link to our Centers of Excellence worldwide http://www.mds-foundation.org/mds-centeres-of-excellence/. We also have a wonderful information program called the Building Blocks of Hope which we can send you via postal mail. If this is something that you would be interested in, please forward your mailing address to patientliaison@mds-foundation.org. In the meantime, you can also view this video http://www.mds-foundation.org/bboh/. I hope this information helps.

    #31658

    Hans Keller
    Participant

    Thanks for responding, I would like to add a few additional points. I am under the care of a well renowned hematologist at Sunnybrook Hospital they have been very caring and understanding. I dont know if a second opinion may be of any help, it could only delay needed treatment as my diagnosis is High Risk MDS. Thank you so much for responding.

    #31659

    Site Admin
    Moderator

    Hi Hans, That is great to hear! Are you seeing Dr. Wells?

    #31660

    Hans Keller
    Participant

    Yes, I am. Thank You

    #31662

    bobderek
    Blocked

    I am so pleased that you have a good doctor. If you have not been there already, I recommend that you visit Marrow Forums at the link below. There are very active Boards, including a Board dedicated to transplants. You will likely find some who are willing to share their experiences.

    http://forums.marrowforums.org/

    Good luck!

Viewing 6 posts - 1 through 6 (of 6 total)

Register for an account, or login to post to our message boards. Click here.

You must be logged in to reply to this topic.

Review answers to commonly asked questions or get answers to your questions from an MDS expert