Hi Jackie,
Thanks for writing in! As far as the progression to leukemia, the current thought is that about 30% of those with MDS will transition to acute myeloid leukemia. Since he is in hospice care and is no longer having tests like bone marrow biopsies, you likely will not be able to tell if he has progressed. The risk of progression and life expectancy really depends on several things such as the sub-type of MDS your husband has, his risk score, and current lab values as well as the lab values when he stopped treatment.
What I can tell you is that no matter the number the physician gives you, it is an educated estimate. No one can guarantee any set amount of time. I think that is one of the hardest parts with hospice care. You know what the ending will look like, but no one can tell you exactly how long it will take to get there. What I would recommend is to talk to the hospice team for some input as they see him on a routine basis and may have better insight.
I’m so sorry you are going through this right now. Our thoughts are with you and your family.
Ashley
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