Hi, everyone. I need your advice. Fred Hutch has taken over my donor search (from Hopkins) and so far, it doesn’t look very promising. So, it seems like I need someone good to advise me on treatments while I wait.
I have a wonderful local hematologist in Washington, D.C., who’s following me but I don’t think he’s an MDS specialist. I did see an MDS specialist at Hopkins but wasn’t comfortable with him.
In your experience, is it enough that I have the transplant/MDS experts at Hutch on my case — backed up by my local hematologist or do I need a LOCAL MDS specialist? What does everyone think? I appreciate any advice. I have considered seeing Dr. Azra Raza at U. of Mass. but I’m starting to get overwhelmed with all the differences in doctor opinions. Is Hutch enough or do I need an MDS specialist closer to home? Thank you for your thoughts! And thank you, everyone, for this list.