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Loretta from MDS to AML

Home forums Patient Message Board Loretta from MDS to AML

Viewing 12 posts - 1 through 12 (of 12 total)
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  • #16532
    LorettaV
    Member

    Loretta’s MDS>AML
    I’ve been off List-serves and Forums for the last week or so, and thought you might appreciate an update. I checked into MDAnderson late Dec. 19. The following day I had tests done, finding my unusual heart structure, which made drs. unsure about the placement of my Central Line. They also gave me a bag of platelets, so they could insert the line. After a CAT scan assured them of correct placement they began chemo: Idarubicin, and Cytarabine. Christmas day I was finished with the chemo. infusion. In addition to the platelets, I have had 4 RBC transfusions. My energy level is good, until they give me benedryl pre-transfusion. Slight n/d, controlled with Zofran and Lomotil. Lost my appetite the 3rd day and have that yucky mucous coating in my mouth that makes everything taste undesirable. I’m in Protective Environment room and can only visit through a glass window on speaker phone, but if this keeps me infection free I can do it. Thank you for the responses and prayers. They keep my spirit lifted.

    #16533
    Russ
    Member

    Many prayers, Loretta.

    #16534
    willie
    Member

    One day at a time and start looking for your neutrophil count to reappear and start climbing. Will be thinking of you. Willie

    #16535
    Caroline
    Member

    Loretta.

    You are a brave lady. My prayers are with you.

    Blessings,
    Caroline

    #16536
    Bkwits
    Member

    Dear Loretta,
    Sending positive thoughts and prayers for your healing and peace of mind.
    Barb

    #16537
    Terri
    Member

    Continued prayers,
    God Bless

    #16538
    SimonChai
    Member

    Hi, Loretta. Thanks so much for letting us know how you’re doing. You sound good! I know how tough it is. You have a great attitude.

    I looked back through the old messages but can’t tell–are you having a transplant when the chemo is over? Wondering how long you’ll be there.

    Stay well and let us know how things progress.

    All my best for a healthy new year for you,

    #16539
    gemloyear
    Member

    Hi Loretta, My thoughts and prayers are with you.
    I admire your courage.
    God Bless, Ellie

    #16540
    maueenh
    Participant

    Loretta,

    So glad to hear that the chemo is going ok. I will continue to keep you in my prayers. Thank you for the update.

    Maureen

    #16541
    LorettaV
    Member

    Simon asked about transplant. They have been looking for donor for 19 months, and retested my sister and children. So, I don’t know yet if I will have a transplant or not. As soon as my Blasts went 32%, next wk 42%, the transplant docs sent me to Leukemia docs.I finished chemo 6 days ago, and I’ll have first bmb in 9 days, then another a week later. I may talk to dr. about transplant possiblility later in treatment. As my counts fall I get platelet and RBC tx, daily or every other day. Still exercising, trying to eat, and emailing. Still feeling positive, “with a little help from my friends’ and my Faith in God.

    #16542
    Harold
    Member

    Loretta, continue to stay strong… mentally, physically and spiritually. I hope the chemotherapy has been successful in getting you to remission. Keep the faith and I’ll pray for deliverance as well.

    #16543
    SimonChai
    Member

    Hi, Loretta; You’re doing well to send such coherent emails during intense chemo treatment. I know I wasn’t able to!

    I am thinking of you and wishing you the best.

    Simon C.

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