My husband was diagnosed in October 2017. Watch and wait for 6 years, this past December (2021), things began to change. He became blood transfusion dependent, was started on Vidaza, 7 days a month. Wasn’t really responding after 4 rounds. Still needed frequent transfusons. Also severely neutropenic, Wbc 1.2 and ANC 0.05. Was also starting to have iron overload (Ferritin level in the 1800 range). Saw the BMT specialist, who wants to move forward with BMT. Now, after round 5 completed, my husband appears to be in remission.Hg 8.7, wbc 4. Now he’s about to start round 6. Primary oncologist sees no reason to “rush” into transplant. Specialist wants my husband to skip round seven, have BM biopsy in August, and go to transplant in September. We are struggling to decide which doctor to follow. BMT is scary, but it’s a cure! My husband is 59 with no comorbidities. Two matches have been found in the Registry. Alternately, he could potentially go on for years with Vidaza.
Wondering if anyone has had simialr situation and how you decide what to do?!?
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