Low to Intermediate Risk MDS Patients & Caregivers

[Anonymous]

MDS Patients & Caregivers
Opportunity to share your experiences living with low to intermediate risk MDS
Whether you are on treatment or watch and wait, your help is needed!

Just Worldwide is looking for patients/ caregivers of patients living with MDS who: ​
* Have received a formal diagnosis by a physician of Myelodysplastic Syndrome (MDS)​
* Who have a risk status of very low, low, or intermediate​

Caregivers:​
* Who play a significant role in supporting individuals living with MDS​
* Responsible for making treatment decisions for/with the patient they care for​
* Joins the patient in meeting with their health care team.​
​
An honorarium will be provided in appreciation for your time.

​If you have any questions or would like to learn more about the study, please contact​
Mansky Charles : mansky@just-worldwide.com​

[Termara Campbell]

Hello. I was diagnosed with low risk MDS 6 years ago. I have also learned that I have sickle cell trait anemia and that I’m n ot eligible for a bone marrow transplant. The only thing that I know about MDS is what I have read online. I would be very grateful for any assistance that I can get.

[Ashley Moncrief]

Hi Termara,

Thank you so much for writing in. We have a number of materials we can send you, both print and online. I’ve put the order form link below. All materials are free of charge for patients and caregivers.

Material Order Form

If you would like more information, you can also email me at patientliaison@mds-foundation.org or give me a call at 1-800-637-0839 ext. 210. I hope this helps!

Ashley

[Termara Campbell]

Hi Ashley,

Thank you so much. I’m looking forward to hearing from you soon!

[Author]

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