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Home forums Patient Message Board Luspatercept

  • This topic has 17 replies, 7 voices, and was last updated 2 weeks ago by fran.
Viewing 3 posts - 16 through 18 (of 18 total)
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  • #52175
    Len Tillem

    I had my first injection Friday, June 12.
    I’m not sure yet how much it’s helping.
    I’ll keep this message string posted.
    I had a transfusion, 1 unit, the following Monday, June 15.
    My HGB was 8.6 measured the day before, 6/11, I got the Luspatercept.
    Does anyone know how long it should take to see a benefit from Luspatercept?

    • This reply was modified 2 weeks, 5 days ago by Len Tillem.
    Bob Derek

    I hope Luspatercept works for you. This is such a new drug that you are doing a real service by posting your experience and I hope you will hear from many others. I am not there, yet. I have not read anything about this drug at Marrow Forums and perhaps posting there will attract readers who are also using Luspatercept so you can exchange information. All the very best.


    I was diagnosed with MDS (no side blasts) December 2018. I am transfusion dependent and receiving 2 units of RBC’s every 2-3 weeks. Tried and failed Vidaza. Had my first treatment of Luspatercept, 2 injections (one in each arm) yesterday. Will repeat in 3 weeks. I am very interested in how others are responding to this new drug. I pray it works.

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