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Luspatercept – Feedback on beginning treatment

Home Demo forums Patient Message Board Luspatercept – Feedback on beginning treatment

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • #58420
    Kenan White
    Participant

    I’ve just had my 2nd shot and really curious if anyone has experienced extreme fatigue – my count is 8.5 which is great for me and should be energized but feeling as tired if not more as I did at 7 or below –

    #58421
    Joe Catalano
    Participant

    Sorry to hear that you’re feeling fatigued still I’m still on watch and wait but I’m curious about Reactions. What I’ve read today is that different blood counts and hemoglobin counts affect people very differently. do you know if your blood count will go up after a while

    #58422
    Joe Catalano
    Participant

    Sorry to hear that you’re feeling fatigued still I’m still on watch and wait but I’m curious about Reactions. What I’ve read today is that different blood counts and hemoglobin counts affect people very differently. do you know if your blood count will go up after a while

    #58470
    Sol Posner
    Participant

    I’ve been on it for almost a year and I have days when I’m really tired and take a few naps during the day. It’s random as to when those days apear. It has extended the time between transfusions but thats been fickle. anywhere between 2-4 months. And a couple times my red blood cell count drops within days of getting the shot. 9.3 when I got the shot, 5 days later 8.5 then a couple days after just before I get my transfusion its at 8.2.

Viewing 4 posts - 1 through 4 (of 4 total)

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