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MDS

This topic has 2 replies, 3 voices, and was last updated 6 years, 3 months ago by Sherry Pratt.

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January 4, 2018 at 1:02 pm #34746

Divya Dwarakanath
Participant

Hi
Few days back my father (age: 69) complained that he is experiencing shortness of breath and chest pain. After diagnosis, we came to know that,platelet count is very low and he is suffering from MDS ,Vitamin B12 deficiency. So he took injections for B12 vitamin.there were some blood transfusions (RDP,SDP,PRBC) as a remedy for low platelet count. But platelet count is not increasing. So,Doctor has suggested to use eltrombopag 50mg medicine. But when googled it, I came to know that this medicine is not used in treatment for MDS. But not sure why our doctor suggested it. Can you please let me know whether it is safe to use this medicine? And also kindly let me know the risk of this disease. Some are saying this is of high risk and some are saying ,this disease of low risk. So please let me the risks involved with this disease. As of now my father platelet count is 20K with giant platelets.

January 4, 2018 at 2:09 pm #34747

lynne
Participant

The only person who can tell you if it is high risk of low risk MDS would be the doctor who made the diagnosis. This information is normally provided to the doctor through the results of a bone marrow biopsy.

January 4, 2018 at 3:12 pm #34748

Sherry Pratt
Participant

I agree with Lynne. Need a bone marrow biopsy to determine exactly what type of MDS he has. There are several types of MDS and they all can be treated differently and with different medications. In my experience with MDS, if you get a push back from a doctor or hedging about what to do next, go for second opinion.
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