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MDS and Drug Study Options

HomeForumsPatient Message BoardMDS and Drug Study Options

This topic contains 2 replies, has 2 voices, and was last updated by  Myra Shaw 2 weeks, 1 day ago.

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  • #36773

    Myra Shaw

    I was diagnosed with MDS EB! in May. They are telling me that I have 2 choices… a new drug study that includes Vidaza and APR-246 or traditional Dacogen. This came on suddenly and has progressed rapidly. I would love to chat with someone who is going to through the same thing. I am scared and don’t feel Moffit is giving me answers. What can I expect? How long has your treatment been working? Is anyone doing this drug study? Any advise? I need hope.


    Sherry Pratt

    Myra. Go get a second opinion pronto. Your physicians should be telling you everything and sitting down with you and explaining every option available to you based on your age, health and disease type.
    Sherry Pratt


    Myra Shaw

    Thank you. Are you a patient? What treatments did you take?

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