`hi Cheryl
I’m an mds del5q patient on revlimid 5mg. I too have anemia. I have shortness of breath and low energy. I’m only 58. As it was explained to me these are symptoms of the disease and shortness of breath is also a side effect of medication. So there isn’t much you can do about it. I walk as much as I can. Can’t go as far as many my age but the way I see it, I’m still able to do much. I’ve had to except my limitations and do things a bit at a time. I can’t push myself to far or my legs get weak and rubbery. Also the pain and swelling when I over do things isn’t pleasant.
I’ve decided that despite it all I’m still alive and I can still have quality of life I’ve just had to except that it comes with limitations.
This may not be the answer you were looking for but I have had to except and accommodate my disability.
Best wishes to you both