MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

MDS High Risk

Home Demo forums Patient Message Board MDS High Risk

Viewing 5 posts - 1 through 5 (of 5 total)
  • Author
    Posts
  • #54562
    Kathleen Till
    Participant

    I was diagnosed with the above on 2nd April and getting my third chemo next Monday.

    Preparing for a Bone Marrow transplant – anyone else had this or going through this.

    I have the trisomy 8 chromosome.

    Thanks

    Kathy

    #54563
    Kevin Dugan
    Participant

    NO I have not, but will be thinking of you and praying all goes well. Best wishes, Kevin

    #54575
    Tom Nelson
    Participant

    4 year MDS del5q patient. Started with Revlimed, then switched to bi weekly Aranesp. HGB went from 10+ to now 8.2 maintenance with the help of weekly Granix. February BMB showed still del5q, but now also 8+ or 3 legged Chromosome 8, additional variant.. Assume this is what is meant by Trisomy 8. lifestyle the same as before, Work in spurts and naps. Doc thinks the 8+ is/has caused the Hgb drop. Trisomy 8 seems to be a newer variant.

    #54576
    Kathleen Till
    Participant

    Thank you. I thought HGB levels should be higher. Mine are 10 and it says low.

    Kathy

    #54662
    Belinda
    Participant

    Hbg “normal” is minimum 12.2. Some labs have “normal” at 11.4. It just depends on the lab processing your blood test. So yes 10 is low, no matter what.

Viewing 5 posts - 1 through 5 (of 5 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert