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MDS-RAEBII -> sAML

Home forums Patient Message Board MDS-RAEBII -> sAML

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  • #50916
    Heinz
    Participant

    Hi,
    because I am new in the forum I would like to introduce myself briefly.

    I am 76 years old and live in Germany.
    I was on Watch and Wait from 2001 to end of 2019 with MDS RCMD.
    In December 2019 I was diagnosted transition from MDS Typ D46.2G\RAEB II to C92.00G\AML.
    From January 2020 on I am on Vidaza and had my 5#th cycle in May.

    I would like to share my experiences and I am very interested in the exchange with similar affected people.
    I am looking forward to an interesting dialogue.
    Heinz

    #50918
    justa0
    Participant

    Wow, my learning curve began last year in November. I couldn’t even say myelodysplastic syndrome for a few days. My watch and wait was six weeks. I’ve had 3 cycles of vidaza, I needed a blood transfusion on the second and third cycle. At 4 cycles I get BMB. I hope I’m in remission. God is good. I know a lot about him, if you want to learn.

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