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MDS Specialist within Kaiser?

Tagged: MDS Specialist with Kaiser netwrk

This topic has 3 replies, 3 voices, and was last updated 5 years, 4 months ago by gailb.

Viewing 4 posts - 1 through 4 (of 4 total)

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December 10, 2018 at 12:35 pm #44691

Claire Messier
Participant

Good morning, I’ve been diagnosed with Refractory Anemia with Ring Sideroblasts, the beginning stage of Myelodysplastic Syndromes. I am a Kaiser patient, and I’m trying to locate a specialist in MDS within the Kaiser network. Currently I’m seeing an oncologist/hematologist, but I want a referral to a specialist to get a second opinion and more knowledgeable physician. Does anyone know of an MDS Specialist within Kaiser? I live in Southern California, but I’m willing to travel.

December 10, 2018 at 3:03 pm #44692

mdsfound
Moderator

Hi Claire, Thank you for your post. Following is a link to our MDS Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. Here you can view the centers of excellence in SoCal. I am not sure if any are in the Kaiser network but I would check with your insurance just to confirm. We also have a wonderful information program called the Building Blocks of Hope which we can send you via postal mail. If this is something that you would be interested in, please forward your mailing address to patientliaison@mds-foundation.org. I hope this information helps.

December 17, 2018 at 2:50 pm #44732

gailb
Participant

Hi Claire,
We too are with Kaiser and I am researching a specialist or going out of the network. I found an oncologist in LA that used to be with City of Hope….am going to try and get a referral. Will keep you updated.

December 18, 2018 at 8:04 pm #44746

gailb
Participant

I found a doctor with Kaiser in Los Angeles, Roberto Rodriguez. This is the doctor that worked at city of hope previously. Look him up in the Kaiser doctors and locations Got an appointment for January. Not sure he is the right foot, but why not try. Will let you know.
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