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MDS treatment

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This topic contains 1 reply, has 2 voices, and was last updated by  mdsfound 1 week, 4 days ago.

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  • #44502

    Ray Lester
    Participant

    My mother is 87 years old. She was very recently diagnosed with high risk MDS, del. 5q and 17% blasts. She was started on Revlimid but taken off after 15 days when the doctor said it wasn’t working. She also felt pretty bad with very little energy during this time. The doctor is now trying EPO injections every week. She had her 1st one last week. My siblings and I have talked to her about looking into the Fred Hutchinson Cancer Research Center in Seattle. Does anyone have experience with this treatment? How about the Hutch Center? Any help would be greatly appreciated.

    #44592

    mdsfound
    Moderator

    Dear Ray, Thank you for your post with information regarding your mother’s health. I know this is a difficult situation for you and I would recommend that you take her to one of our Centers of Excellence in MDS for a second opinion. She should be very carefully assessed before undergoing any treatment. Benefits versus risk analysis should be done with any treatment. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. Fred Hutchinson is one of our designated centers of excellence. I would recommend either Dr. Joachim Deeg or Dr. Bart Scott. I hope this helps.

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