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MDS with TP53 Mutation?

This topic has 17 replies, 9 voices, and was last updated 4 years, 6 months ago by herb.

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October 15, 2019 at 5:09 pm #49178

Amy C
Participant

Herb, I truly pray for you to have good results. Keep up with water and hope you have a successful stem cell transplant! Oncologist told me he has a patient using the venetoclax and so far so good a year in.

October 15, 2019 at 7:51 pm #49179

Pat Lawson
Participant

Herb my husband is 65 years old and was diagnosed with high risk MDS last October. He has been in a clinical trial since last November consisting of Vidaza and Veneteclax and he is considered in remission. They say he has responded beautifully to the treatment and have many of the same results from others. I pray it will do the same for you.

October 17, 2019 at 11:00 am #49181

herb
Participant

Amy & Pat, thank you for your thoughts and prayers. MDS is a hideous situation and through no fault of our own, we have it and are fighting for our lives.
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