MDS is a bone marrow failure disorder
MDS is a blood cancer
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Multiple Myeloma and MDS

Home forums Patient Message Board Multiple Myeloma and MDS

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  • #45152
    Suzanna Fienes
    Participant

    Hello All,

    I was wondering if anyone out there has been diagnosed with both MMand MDS. My mother was diagnosed with MM in 2012 and has suffered a lot of bone destruction in her spine. Then last September after a year of bimonthly blood transfusions she was diagnosed with MDS and bone marrow failure. The doctor put her on Aranesp and after 3 months of treatment her anemia has stabilized. I live far away from her and can hear in her voice that she is still not feeling well at all. She doesn’t like to share details of her blood tests so it’s hard to know what’s going on. When I look online the prognosis is not good. It’s hard to know when to go there if she is declining. Can anyone relate to this and offer insight?

    #45155
    kathryn Mullaney
    Participant

    Suzanna you are in a difficult situation. If you can get away I would go. Make your own mind up as to how she is doing. Maybe you could go to a doctor visit with her and find our some information first hand.My personal experience has been to visit while they are still here with us.
    God Bless both you and your Mom.

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