Hello all,
I’ve posted on and off, but have always come to this forum for answers.
My dad was diagnosed in Jan 06 with MDS RAEB, and we found out it had transformed into AML in March 2007. He started Chemotherapy April 2nd and breezed through the 7 days, then they did another 3 days to try and get the blasts lower, but after that he didn’t seem to be doing so well. He was sleeping a lot and we were told his kidneys were not doing very well so we were making him drink and eat constantly. Well come to find out his Liver shut down and we took him home on May 13th and he died on May 16th.
I just wanted to tell everyone he was doing so well on Vidaza and his doctor thought he could go longer in between the shots. This in turn made it so the Vidaza stopped working. He then took Decitibine and this pushed him into AML. Anyway I just wanted to tell everyone who Vidaza is working for, not to try and wheen yourself off of it as it may stop working and there is no scientific research on this yet as it is a new drug. I just hope I can help someone not to do what my dad’s doctor did.
Thank you so much for all of your help on this forum.
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