My father….therapeutic vent

[Kathryn]

Hey you guys. This is a therapeutic post. I hope this is ok……I don’t mean to be a bummer, but I am so heavy hearted and don’t really have anyone to talk to….I SO appreciate your support.

I was with my dad yesterday and it was so obvious that his platelet count had gone down. He is literally covered in purple – head to toe, had spots on his face where he had cut himself somehow and his coloring was a mixture of yellow, red & purple…. It made my heart ache horribly to see him feeling so bad. Fortunately he is still getting around. When I mentioned how I was looking forward to hanging w/ him on the beach during our family trip, he told me that he would not be able to go. This is the first time he has said that. He just feels too bad. He is a sea man and for him to miss a trip to the beach is huge….. We haven’t cancelled though…. it is too final and there is always hope. He starts his 3rd round of Vidaza next week.

Anyway, he goes to the doctor today. He wanted to make his appointment for earlier in the day because he cut his finger and it wouldn’t stop bleeding, but he has to go to a retina specialist (his eye never fully healed from cataract surgery) first. My step. said that she felt he has gotten worse. I feel sick to my stomach and am sitting on pins and needles…

Oh well… as always, my prayers are with you all and I am sending you my love and best wishes.

Thanks for listening….

Kathryn

[Carrie]

*hugs*

We’re listening…

Carrie

[shirlsgirl]

Kathryn,

hang in there woman….

hope your Dad is feeling better.

Take care, Jody

[sarah]

Keeping you and your Dad in our thoughts and prayers. Hang in there! Remember one day at a time.

[Terri]

Venting is what we are here for to listen and help each other. I hope your dad starts getting better. God bless

[Kathryn]

I’m hanging tough… especially thanks to you all! One day at a time is right! I am really tired today and that is definitely not good for the emotions.

Our suspicions were right… my dad’s count was its lowest yet at 5,000. His whites were up to 40,000. It will be interesting to see what the doc. will want to do when my dad sees him on Thurs.. After each platelet tx. his count goes up a little and then comes back down farther than before. Is he becoming dependent? Can his body eventually reject them?

Thanks again to all of you for your encouragement.

Kathryn

[Suzanne]

I believe platelets don’t live long and yes eventually the body will reject tranfusions of them.I hope the docs are able to keep him comfortable and moving around. I know this is hard for you.

[JulieMarie]

Kathryn,

Stay positive, Keep mentioning the beach trip to your dad, don’t let him back down on you yet. I know with my mom’s Vidaza treatment each round got alittle tougher for her to fight but her 5th round is being delayed until after we get the results from her bmb. She’s been feeling better this past week so maybe we are in the clear. If your dad can’t go to the beach with you, brain storm on how you can bring the beach to him, I know yankee candles has some summer scents about the beach.

[Kathryn]

Hey, funny, we had mentioned bringing the beach to him if he couldn’t go. I think it is a wonderful idea. Yesterday he told my sister that he needed to get away and that he really wanted to go to the beach. Today though he has coughed up some blood. Not sure how much, but the fact that he is coughing up any at all is very concerning. We’re still keeping the faith though….He goes to the doc. tomorrow in the morning for his blood work so I am sure they will look into that…

Best wishes,

Kathryn

[Joannie]

Hi Kathryn,

I too will be praying for your family. I know it is very difficult but try to enjoy each moment with your dad. Savor them! With Gods will there will be countless more! Try to not let the scary bad thoughts overwhelm you! Enjoy your time at the beach or just enjoy your time sitting on the sofa together! All my best, Joan

[Terri]

When Bob was first dx he was coughing up blood, They found that he had a severe bronchial infection They had to do IV antibiotics to knock it out of him. That was before we started all of the vitamins, supplements etc.
His doctor has him on Levaquin an antibiotic orally for some time now, I know people say you should be on antibiotics for long but knock on wood He has not really gotten sick and I think it is due to the vitamins and the antibiotics as well.
I hope your Dads starts feeling better and his counts start to climb to Normal

[Author]

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