Well, this is my first post. I am an R.N. and live 400 miles from my mom who is in Los Angeles. She was admitted to Cedar Sinai in December with bronchitis, ended up with a Hgb of 7.5 and in the process found out that she has CMML. She just completed her first week of Vidaza and her numbers have improved. Hgb 12, not sure of the platelets but they are O.K. Now she is getting something for WBC improvement.
As an R.N. I have been searching the internet for all the information that I can find, and I found this site. It has helped me lots. Tried to go down and see mom today, but the weather didn’t permit it. I did see her around Christmas. She is very weak and frail now, but tolerated the Vidaza pretty well. Our main problem is that she isn’t eating much, and we know how important that is. She has absolutely no appetite. My dad gives her an Ensure shake every day and that seems helpful. He is also 78 and is doing a great job taking care of her.
Thanks for listening, all. I hope to get to know you!