MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

My Mom at 97 may stop her transfusions for MDS

Home Demo forums Patient Message Board My Mom at 97 may stop her transfusions for MDS

Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
  • #58678
    Marc DiMaggio

    I am heartbroken, my mother was diagnosed 3 years ago with MDS, low RBCs, treated most recently with Reblozyl, Reticrit, and transfusions. Now due to multiple other serious health issues, my sister wants to stop transfusions and treatments. I know this will mean death and cannot accept it. Yes, it is hard for her to be transported to transfusions and maybe it is dangerous, (she also has CHF, Afib, kidney failure) I do no know. I thought this decision would come from the physicians not my sibling.
    I cannot let go, my mother has always been there for me. Anyone stopping treatment?


    Dear Marc,
    If your Mom is lucid then it should be her decision and respected. If not, then perhaps a meeting with your siblings, mom’s doctors, if you have a belief in God, then also with your spiritual father.

    My best to you and yours,

    Carolyn Stein

    I agree with M. Make your mom part of the discussion, if she’s able. It’s her life and her wishes should be honored, or at least greatly considered. God’s blessings on you all as you go through this period of transition.


    I have to agree with the above posts. Your mom has been blessed with a long life. Many cannot say the same. I have found that people get tired of the fight and know it is time to go. The decision is hers. She is the one who has to endure.
    Best of luck to you all.

    Richard Wagner

    I am 85 year old male, and have had MDS for 7 years now. Was told I would die five years ago, but held in there. Took Vidaza chemo for six months, and did not like it. I started getting Transfusions this year and needing more and more. I am planning to stop all treatment soon. Just tierd of all the BS dealing with CBC numbers, hospital visits etc. This MDS is a Terminal disease, and I have no fear of dieing. I have a Hospice company lined up and
    will let my wife of 37 years give me drops of medicaton to ease pain and suffering.. I have a great wife.
    To the children of patients.. Pleae let you parents make the end of life decisions.

    Marc DiMaggio

    TO all who have responded, one fact I did not include.. my mother was not able to speak or make the decision. Of course, we would go with her decision but it was not possible to know her choice. My mother passed away after I left the message…

Viewing 6 posts - 1 through 6 (of 6 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.



Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert