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My Mother was cured.

Home forums Patient Message Board My Mother was cured.

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  • #23274
    Doug
    Member

    My mother was diagnosed with MDS about three years ago. I have thought about posting this info for a long time and am ashamed I waited so long.
    On a checkup at Kaiser Panorama City it was found that she had almost no blood and she was subseqently diagnosed with MDS. The doctors told us she had maybe three months to live and to get her affairs in order. Over the next several weeks, she was given transfussions to keep her going. First it was once every ten days, then once a week, then twice a week. She was 83 years old. Due to the effects of the drugs she was on, she got mouth canker sore so bad she could barely swallow so she was admitted to the hospital. While there she was given intravenous anti viral drugs. Zovirex. She also had been on Procrit.
    Her canker sores subsided and we went back to the routine of transfusions but after about three weeks her doctor said her blood levels were improving. After another month or so they were normal. Finally the doctor announced she was in total remission.
    She remains clear of the disease to this day. I am sorry the details of this post are not more specific but my recollections are not that great.
    I was a little shocked that the doctor didn’t make more of a deal over this and it has nagged at me to this day so I have made this post in hopes that it leads to a cure.
    Doug

    #23275
    Mary4Mike
    Participant

    Doug,
    Was your mother diagnosed by a bone marrow biopsy? If not, I really doubt if she had MDS. Having almost no blood is not a symptom of MDS. Perhaps she was extremely anemic and the Procrit and transfusions built her up to a better state of health. The Zovirex rid her body of perhaps Epstein Barr besides the herpes simplex 1 virus. This would be an answer as to why she was so run down. I am thrilled that she recovered.

    All the best.

    #23276
    Doug
    Member

    I am only going by the doctor’s diagnosis but who knows. I don’t remember if she
    had a bone biopsi.

    #23284
    lindajo
    Member

    MDS may have a viral basis. It is possible the disease will reoccur. It is imperative that you get copies of all of her lab results and doctors notes. If she gets sick again knowing what was done and when can save you valuable time in a critical or emergency situation. Even if she gets a completely different health problem that is unrelated it might save her expensive and painful testing in the future. I am grateful she has recovered from her crisis.

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