Hi Neil and Bety,
I was following your posting regarding your husband’s RARS and I wanted to hone in on something Neil said because we just found out about this for my MIL.
Neil, you mentioned you weren’t sure how iron overload affects an 83yr old and we just found out. My MIL is 76 and we just found out that iron has deposited on her kidneys and liver and the functions (especially her kidneys) are being severly compromised. She has to take a kidney supplement (it works similar to lasix but isn’t a drug) just to keep the fluid from building up. If she doesn’t take it, by nighttime she’s nearly drowning in her own fluid.
So I guess my thought on this, Bety, is first to consider how much treatment your husband wants. If he wants to fight this thing tooth and nail then you’ll want to stay on top of his ferritin when it hits 1000. Mom’s is at 3018 and we are just doing the paperwork for Exjade now. I wish we had known a year ago what we know now, but that happens. Our doc said that children and older folks (over 70) are effected by the iron worse.
All the best,
patti