MDS is a bone marrow failure disorder

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new issues for mom

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This topic contains 1 reply, has 2 voices, and was last updated by  mdsfound 2 weeks, 2 days ago.

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  • #33929

    L. Ann Sinopoli
    Participant

    Well I stated a couple of weeks ago that Vidaza wasn’t really working and asked about cannabis oil which we haven’t tried yet. New complications have come about. Enlarged spleen and liver, kidney function tests are now showing a problem. Increased tired and now the white cells are very elevated, 148 last week but the the blasts are not showing AML. We can do another bone marrow because her marrow was so cellular the last time the doctor really couldn’t get much out. So with all that being said we have started her on Hydrourea 3 x’s a week see if it sould at least get the whites down. we are on our last rope, treating doctor with 30 plus years experience and a doctor at Sloan haven’t seen anything like this. Has anyone else?? does anyone have any tricks you their sleeves/ We have nothing else

    #33944

    mdsfound
    Moderator

    Dear L. Ann, Thank you for your post with information regarding your mother’s health. I know this is a difficult situation for you. Please give me a call at 1-800-637-0839 Ext. 210 at your earliest convenience. I would like to discuss some options for you. Thank you, Audrey

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