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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 12 posts - 1 through 12 (of 12 total)
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  • #19928

    i think a lot of members might have trouble posting because they don’t have their password


    Hi Eve, How were you able to get on? I haven’t been able to get on since 12/20. I spent 2 hrs. last night trying, I still am not sure how I did it. I noticed that there were only about 5 people posting. I wish the admin. would inform us on how to get into the new site. I guess I’m not very computer literate but I am persistant.
    Thanks and Happy New Year,Ellie


    I didn’t know about the change either. I finally went to the main page and chose the forum link. My old favorite gave me an error. I have admin powers but just to delete the spam. If you want to communicate with the real admin, email to .


    i was able to get on because when i first joined the forum i made a note of the password they gave me – and luckily i remembered where i wrote it down

    may the new year bring good health and happiness to all



    what you need is your e-mail name. if you forgot your p/w, check the box & it will come to you via e-mail.


    I had no trouble getting reregistered after I went to the main site because the forum had been down so long and found the new connection. But do watch for the difference in zero and the letter o in your password and I and the number 1 I originally had trouble with that until I marked my notes which were which in the password.


    Hello, No problem getting on here. I had mt password saved and the login is automatic…I just clicked the link and it took me to the new location. All my prayers and best wishes to patients and caregivers for a New Year filled with hope and love. We are all somehow connected by this awful disease and I am grateful for this forum to read, ask, discuss issues. It helps so much. Thank you all. ——————————- Husband 61,MDS 9/06. Vidaza worked for 6 months, then dacogen, danazol, revlimid etc. no response. now, 12/07 transformed to AML, very high blasts, finally,a plan.. (INDUCTION CHEMO)done 1st round..waiting for a BMT and praying, praying and more praying.


    I logged on fine, once I found this. That took a while though. I thought maybe it was a temporary glitch which wasn’t getting fixed because someone was on vacation over the holidays. I did try going through the main home page early on, but it didn’t work. Just decided to try again today and walah, here I am. I am really glad the forum is still here, I thought I lost it forever!



    Sorry, I was off for the holidays. I have posted a notice on the old link/bookmark that now directs people to the new location and how to retrieve their passwords in case they have forgotten it.

    The forum can now be easily accessible by




    Because of the “temporary glitch” with the forum, have we lost the search engine for good or is that only temporary also? It would be a shame to lose all that info.



    I have re-indexed the search function. It should be working now. Let me know if there are still any problems.

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