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This topic contains 4 replies, has 3 voices, and was last updated by  Chris Ballmer 5 days, 12 hours ago.

Viewing 5 posts - 1 through 5 (of 5 total)
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  • #44905

    Michael Cook
    Participant

    Just got diagnosed. I have my 1st appt. in 1.5 weeks. They said the Doctor and Coordinator will meet with me to see if I am a candidate for a transplant. Why would I not be? I’m only 49. No other issues other than A-Fib.

    #44908

    Chris Ballmer
    Participant

    I’m 51. I wouldn’t jump right in to a transaplant if i could put my two cents in (you’ll have to qualify first anyways). Are you on anything now?, trying some lower power drugs first may or may not buy you some time. Have a list of questions for the professionals, and consider alternative ways to elongate your lifespan. I’m using a operator-moderated mixture of conventional and alternative treatments… Nutrition changes/improvements are possible and may also give your body more resilience in case you need to start on a chemo based regimen. Just saying.

    #44933

    glynes
    Participant

    Sorry to hear of your diagnose. This is pretty standard to do an evaluation. Might seem illogical but you have to be healthy enough to go through but not be so healthy that you don’t need it. What I’ve learned is if the risk of your condition is below the risk of the transplant, they will put you on hold. The reason is that the transplant is a very difficult process and there is a significant mortality risk. Understand that while transplant is the only known cure, it is also viewed as procedure of last resort because of the risk.

    I’d suggest before you go, you do some research looking at the process and risk of transplant so you understand and can ask good questions. Don’t overly focus on the risk statistics because they aren’t pure and many of those who go through have other health problems that complicate their outcome. In going for the eval you have to know you want the transplant because they will ask and you have to be committed. Of course you can tell them you need to time to think about it but it will come down to your decision if they are on board in doing the transplant.

    I hope this helps. Good luck with the evaluation.

    #44938

    Michael Cook
    Participant

    Thank you for the input, Chris.
    So, are you a candidate for a transplant? If so, why aren’t you doing it?
    What kind of meds are you trying and did you find out about them thru research or your doctor?

    #44959

    Chris Ballmer
    Participant

    Michael – City of Hope in LA put my name into their global database, and my brother is a half match. I’m not doing it because it would be too risk, for the need. It’s like cutting off your finger because you pricked it with a rusty nail… you’d try some lower risk things first… but if it got gangrene and infected then that may be the only way to save your life, etc… Procrit to boost RBCs, my Kaiser Onc prescribed as normal protocol to boost red blood cells because they are low and getting more oxygen to my brain is a good thing…expecially for my old brain! 😉

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