New patient's advocate

[Zolita Marquez]

My husband platelet count was found low platelets (127) from routine lab in 2012. His PMD was monitoring his labs every 4 months. It was fluctuating but was always below 150. He had a 2nd lumbar laminectomy in 2017 which his hematologist cleared him. Her diagnosis was confirmed with #2 BM biopsy in Sept. 2018, low risk MDS. He has been getting Neupogen every week since November 2018. He is still working as a general practitioner dentist in Southern California. His hematologist/oncologist seems to be ok with his current treatment and his body’s response. As a wife, I am worried sick for him. Latest Platelet was 94, WBC 3.2 and WBC 3.8.

[Michael]

Z~~~

I was diagnosed in June 2016 RCMD low risk. I have no issue with platelets, RBC is modestly low, hbg avg 12, wbc avg 1.5, and ANC nearly always below .5. I am on watch and wait, with monthly blood draw and annual bmb. Drs. generally don’t prescribe neupogen as prophalactic. I had a number of neupogen injections at outset as initial hematologist wanted to use Vidazza treatment. Neupogen was to bring wbc to level that made hematologist comfortable to use Vidazza. Second opinion at Center of Excellence with MDS expert led to no treatments but monthly monitoring.
Since June 2016 I’ve been essentially infection free, although I do get some minor skin infections from time to time.

This disease affects everyone differently. I wish you and your husband all the best.

[Author]

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