MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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    Carrie Duff

    I am caregiver to my long-term (30+ years) partner who was diagnosed two months ago with high risk MDS-EB1. At 73 years old, Russ is considered very high risk. The diagnosis has blindsided both of us, as we are complete novices to modern medical care and intervention, having been very healthy and active until now. I will be using the message board to search topics and info from fellow patients and caregivers. Is there a “search” feature to find specific topics?

    Ashley Moncrief

    Hi Carrie,

    My name is Ashley and I am the Director of Patient Care for the foundation. Thank you for writing in. There is a search feature at the very top of the webpage you can use. If you would like to call me or email me, there is a lot of material we can send you free of charge. I can’t give medical advice, but I can help with basic questions as well. I put my contact information below. Feel free to reach out.

    Phone: 1-800-637-0839 ext. 210


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