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New Vidaza Patient

Tagged: Vidaza

This topic has 52 replies, 3 voices, and was last updated 3 years, 7 months ago by Heinz.

Viewing 7 posts - 46 through 52 (of 52 total)

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June 4, 2018 at 8:12 pm #36601

Barbara Hunter
Participant

DIANA, So glad to hear your labs are normal! My husband had his labs today and while it was not as good as last month still OK! Doctor has oked a 5 week break if next Month the labs are normal. We are excited about that! You have given us hope that Vidaza might be more than we hoped. Let’s keep in touch.

July 3, 2018 at 9:18 am #36760

Barbara Hunter
Participant

Sad to report this is the second month of decreasing blood counts. Doctor says we must consider that Vidaza has stopped working. He has little to offer for future treatment. Very discouraged.

July 5, 2018 at 11:43 pm #36775

Myra Shaw
Participant

Is anyone on the drug trial Vidaza and APR-246. How is it working and how are you feeling?

July 9, 2018 at 4:01 am #36794

Ben Dunhill
Participant

thanks

September 18, 2018 at 6:17 pm #44073

Barbara Hunter
Participant

After a 6 week break from Vidaza my husband’s blood tests are much improved. Doctor recommends 6 week break between treatments instead of 3 weeks. Has anyone experienced this?

August 23, 2020 at 9:24 pm #52715

Amy S.
Participant

Hi, Diana and Barbara Hunter,

Thanks for all the information. It was helpful. I have not seen any posting on this for a long time. How are things doing ? Were the blood counts normal after the vidaza schedule was changed from a frequency of 3 weeks to 6 weeks ? I am in a similar situation. I have been on Vidaza for 8 cycles and the last several cycles had normal blood counts. I wonder if I could ask the doctor to switch to a 6 week cycle ? Thanks for any information.

September 9, 2020 at 1:55 am #52820
Belinda
Participant
They were giving me decadron(steroid) and two nausea meds before I start with my Vidaza injections. I was so very sick that first time. Also went from diarrhea to severe constipation due to all the nausea meds. Zofran and Compazine, both nausea meds prescriptions,for at home nausea and vomiting.
After two weeks of the Vidaza shots, I refused to take them ever again. So I now have a port now and receive the Vidaza IV and all the other meds. One stick and everything is infused there in my port.
Please ask your nurse for something for nausea. Tell them your symptoms. They are there to not only give you chemo, but monitor your symptoms to share with your physician.
- This reply was modified 3 years, 8 months ago by Belinda.
- This reply was modified 3 years, 8 months ago by Belinda.
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