Hi Everyone, I’m New to this site but not to MDS. My husband was diagnosed in 2014, to be honest I can’t remember the first treatments he first received but they were transfusions. They didn’t work! So they tried another transfixed drug, it didn’t work either. Plus they were giving him steroids during that time. The only thing that did was make him feel good, at least for a while. They performed bone biopsy. His Dr said no cancer? Well, in Dec. 2014 they removed his spleen, saying that was what they thought was killing his platelets. That didn’t work either! After healing from that surgery, they started chemo treatments, that didn’t work so they changed chemo plus gives him a profit shot once a week. His has received numerous blood an platelet transfusions. His platelets have dropped as low as 3000 and was put directly in hospital for transfusion. There is so much he has gone thru I can’t hardly keep up myself. Tuesday he is returning to MUSC to see the doc that actually diagnosed the MDS. Perhaps they have something else to try, my husband will be 78 next month, but 2 yrs ago you would not believe his age, now however he seems to be aging so have I. Thanks for listening and sharing. I will try to check on all of y’all. God bless! Rich W hope you are doing better….
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