MDS is a bone marrow failure disorder

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Newly Diagnosed

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This topic contains 1 reply, has 2 voices, and was last updated by  Site Admin 8 months, 1 week ago.

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  • #31917

    Janet DelCiello
    Participant

    I was recently diagnosed by a hematologist at a local community hospital through analysis of extensive bloodwork and bone marrow aspiration/biopsy. He has not been forthcoming with a great deal of information and was primarily concerned with referring me to a specialist at a teaching hospital. He did tell me that I was low risk for developing leukemia. I have since made an appointment with Virginia Klimek, MD, Memorial Sloan Kettering for March 24. I am overwhelmed with all the online information and frankly not encouraged by any of it. My anxiety level is high. I have no symptoms and this all came up during a routine physical/bloodwork.

    The diagnosis listed on my bone marrow morphology is “Hypercellular marrow showing maturing trilineage hematopoiesis with mild dyserythropoiesis and mild megakaryocytic atypia. No increase in blasts”. The additional comments states “Dyspoiesis is a morphologic change that can be due to nutritional deficiency, myelotoxic/myelosuppressive drugs, chronic viral infections, severe or sustained inflammatory conditions or primary myelodysplastic syndrome.”

    Does this sound like a definite diagnosis. Any input on this is appreciated. I look forward to meeting with Sloan Kettering.

    #31920

    Site Admin
    Moderator

    Dear Janet, I am happy to hear that you have an appointment with Dr. Klimek. You will be in good hands and she will be able to determine whether or not you do indeed have MDS. We have a great book available to you free of charge called 100 & Questions About MDS. If you would like a copy, please email your postal address to patientliaison@mds-foundation.org. I hope this helps. Best wishes for your second opinion with Dr. Klimek at MSKCC.

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