Our Story about living with MDS has been published
April 11, 2007 at 5:21 pm #17712
In our quest to try and get more publicity for MDS and people involved in supporting it’s research, I wrote an article about our life.
It has been published at http://www.healthmad.com Right now it is on the front page as a promoted feature story.
I am trying to get it published in a national magazine as well.
If anyone is interested in doing the same, I would be more than happy to help.
Please email me at: SBarbor@comcast.net if you are interested.April 11, 2007 at 6:47 pm #17713Jack_dup1Member
Great news, great article. Not a happy one, but I’m hoping for a happy ending.
JackApril 11, 2007 at 7:37 pm #17714BkwitsMember
What an informative article and a wonderful tribute to Mike. Thank you for your efforts in educating the public and generating funding for research of MDS. BarbApril 11, 2007 at 8:08 pm #17715rileyMember
That article is absolutely beautiful. Thank you for sharing it with us — and thank you for all that you’re doing to educate others about MDS and encourage more research.
NicoleApril 11, 2007 at 8:38 pm #17716eveMember
is there any way to get the ads off the print – would love to read the whole article but the ads are blocking the lower half of each page
eveApril 11, 2007 at 9:04 pm #17717
Unfortunately I have no control over the advertising on HealthMad.
If you email me (SBarbor@comcast.net) I will email you the article from my computer.
SandyApril 12, 2007 at 12:07 am #17718TerriMember
Sandy what a wonderful article, I wish I had the same writing skills but the sound of your story sounds so familiar. When we first went to our Primary never heard of MDS when I searched prior to the Hemo visit all I could find was info on Leukemia.
Thank you for sharing this.April 12, 2007 at 2:02 am #17719eveMember
great and informative article – hope many people who know nothing about mds read it and maybe get inspired to help fight this horrific disease
good luck in your continued quest for awareness and good luck with mike’s health
eveApril 12, 2007 at 3:28 am #17720KWJMember
That is a great tribute to Mike and to you. Thanks for sharing it. Keep up the good fight! I am pulling for you guys.April 12, 2007 at 10:19 am #17721choijkMember
I just read your article and it is simlply beautiful. Today was a hard day for me because my dad’s hgb just dropped from a 9.4 to a 6.9 within 2 weeks. It was just a blow both emotionally and mentally. But when I read your article, I realized I just need to pick myself up and continue to spread the awareness of MDS to anyone and everyone. Thank you for your ongoing crusade to find the cure for your husband and for all those families that are living with MDS. God Bless you.April 13, 2007 at 2:23 am #17722
Thank you all for your wonderful thoughts and praise. I am touched.
Just to keep you up to date. Yesterday, there were close to 400 people who read the article. That is pretty good for one day.
Some of you have requested that I email the story and say you will be passing it along. A couple even asked for a printable copy to send to their legislators. I am open to any suggestions on how to make the article work for us in getting attention and hopefully reasearch dollars.April 17, 2007 at 1:38 pm #17723
Good Morning All:
Just an update on the article. To date 529 people have read the article. This has driven up the number of letters being printed off to send to Congress.
The not so good news. I submitted the article to Women’s World, and the following was the reply I received:
I was out for a couple of days and am not sure if I responded to this e-mail. So if this is a duplicate, please forgive me. I did receive your submission. Unfortunately, as emotional and dramatic as the story is, it doesn’t meet our requirements. All of our stories need to have happy endings. We would need your husband to beat the disease. Our thoughts and prayers will be with both you and your husband.
I guess important issues like how to remove crayon marks from a tee-shirt is more important to Women’s World.April 17, 2007 at 3:09 pm #17724BkwitsMember
quote from Kathy at “Women’s World” >>>>All of our stories need to have happy endings. We would need your husband to beat the disease. >>>>
Yeah, if she can just tell us how to do that. geessh!April 17, 2007 at 4:43 pm #17725rileyMember
I’m very sorry to hear that they turned down such a great article — and in such an insensitive way.
I hope you’ll keep trying other avenues to get your article published. With 529 people reading it in the first six days it was online, there’s obviously interest in what you have to say.
NicoleApril 17, 2007 at 5:56 pm #17726J.claireMember
That response from Women’s World is so incredibly insensitive that I will NEVER read that magazine again, even if it is free in the waiting room! Keep on trying to get your story published. How about trying O, the Oprah Magazine? I applaud your courage and stick-to-ed-ness.
Register for an account, or login to post to our message boards. Click here.
- You must be logged in to reply to this topic.