MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Out of Breath

Home forums Patient Message Board Out of Breath

This topic contains 2 replies, has 3 voices, and was last updated by  Joseph Agustin 1 month ago.

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • #46322

    Cindy Reed
    Participant

    Hi, I am brand new to this MDS cancer. I have read that being out of breath is one of the symptoms. I think that is because our hemoglobin is low. Unfortunately my oncologist keeps ignoring my shortness of breath and completely dismisses that it could be from the MDS. That is one of the symptoms that I have noticed is emphasized. So I was wondering …..Does anyone else experience this AND If you do have shortness of breath related to MDS , is there any treatment?

    Thank you All.

    #46323

    Allan Romriell
    Participant

    Cindy,
    I have MDS-RS so red blood cells and hemoglobin are the mostly effected. Shortness of breath when exerting myself is probably my biggest issue. I also am tired most of the time and don’t have much stamina any more. I am 66 and was diagnose almost 2 yrs ago, on watch and wait since diagnosis. Although my numbers have been steady since diagnosis and in fact my hemoglobin and RBC were better in Feb. than at any time previous, I still have the shortness of breath issue and it seems to be worse than 2 yrs ago. I don’t have any solution, when it happens I stop for a minute and catch my breath then continue with what I was doing. I wish you the best in your fight with this disease, it is so different for everyone.

    #46326

    Joseph Agustin
    Participant

    Yes, red blood cells transport oxygen. When your red blood count is low there isn’t enough blood to transport required oxygen. When my dad was diagnosed with mds, it was very fast in its progression. But walking up stairs he would get winded. One time walking my niece around the block he turned yellow and had to sit down, his body needed more oxygen then he has red blood cells to transport it. It’s not a matter of your body or lungs not taking the oxygen in, it’s a matter of the blood not being there to get it where it needs to go. We could gauge his rbc level by the speed at which he would get exhausted.

Viewing 3 posts - 1 through 3 (of 3 total)

Register for an account, or login to post to our message boards. Click here.

You must be logged in to reply to this topic.


Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert