Here at the MDS Foundation, we want your voice to be heard.
We are currently looking for MDS patients to participate on a MDS Advisory Board.
If you or someone you know fits the following criteria and would like to participate, please contact our Senior Project Manager for the Patient Community Janice Butchko at jbutchko@mds-foundation.org.
Thank you for your consideration!
Participation Criteria:
In order to participate in the advisory board, you must be a MDS patient who meets one of the following criteria:
Patients diagnosed with lower risk MDS who have been symptomatic for at least one year. Patients must be or have been transfusion dependent, defined as receiving at least one transfusion per month.
Patients may have been treated with one of the following: Procrit, Aranesp, Epoetin alfa, Darbepoetin, or luspatercept.