MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

pevonedistat and vidaza

Home forums Patient Message Board pevonedistat and vidaza

This topic contains 0 replies, has 1 voice, and was last updated by  mini miyaso 12 months ago.

Viewing 1 post (of 1 total)
  • Author
  • #36663

    mini miyaso

    As a caregiver of my aged 70 father, who is diagnosed with high risk MDS the last 4 months, I need to share the experience of participating in a clinical trial with pevonedistat. The last two months that he is taking therapy with vidaza and pevonedistat we have seen a huge improvement in platelets (from 20.000 to 130.000) and a valuable decrease in blasts, <5%. At the same time he has a fever that keeps him in hospital in a very weak condition. Doctors cannot attribute fever to any pathological reason (so it seems to be a drug reaction -but which drug they do not know yet). We are at the beginning of this trip and we feel the uncertainty of the begginers… Has anyone the experience of pevonedistat? Is it true that vidaza does not work enough for high risks? I have a thousand questions, although I know that we have to wait and see. I still worry because the in hospital treatment and the feeling of the patient is awful (weakness, always in bed, fever, swelling, insomnia).

    • This topic was modified 12 months ago by  mini miyaso.
Viewing 1 post (of 1 total)

Register for an account, or login to post to our message boards. Click here.

You must be logged in to reply to this topic.



Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert