MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.


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    Pat Kleczka

    Husband is a 12 year kidney transplant patient who developed anemia and has been treated with Aranesp for the past 2 years with occasional blood transfusions. Illness has developed into MDS and he was treated with one series of Reblozyl which caused extreme fatigue. He feels great with a blood transfusion but those cannot continue forever.
    Looking for some information from those of you who are currently being treated with Reblozyl and your reaction to the drug. How long did you take it, what were the side effects short term and long term. Were the side effects always the same or did they decrease or increase with time.

    My first time on this site but find it very informative.

    THanks for any information provided.

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