Reblozyl Luspatercept/ hurting upper Back

[holly tapia]

I am 78 yrs old and was dx with MDS March 2023. I was approved for Luspatercept shots and began them in Jan. 2024. I have some ups and downs but my concern is my upper right back under my shoulder. I was wondering if anyone else has had this pain/problem. I have asked the PA and she didn’t see a connection. I did some research and one of the side effects is back pain along with everything else. I am new to this site so any info would be so appreciated. Yes, I am going to talk to my doctor. Thank you Holly Rae

[Ashley Moncrief]

Hi Holly,

Thanks for writing in! I think the connection depends on exactly what is causing the pain. During the study, 30% of patients experienced musculoskeletal pain; however, it was only considered severe in 3% of patients. Upper back/shoulder pain can be caused from other things though ranging from heart conditions to gallbladder disease. Checking with your doctor is best to rule out other conditions. If it’s muscle/skeletal pain, there is chance of a connection.

Hope this helps!

Ashley

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