Hi, everyone. I just wanted to reintroduce myself and wish everyone a happy holiday. I haven’t participated in this list for quite a while.
I had a double-cord blood transplant in April 06 at Fred Hutchinson for a bad-prognosis case of secondary MDS. I engrafted 100 percent, and there was no sign of the disease this summer at my last bone marrow biopsy. Since then, I’ve been dealing with some fairly bad graph-versus-host disease but I am fortunately able to still work part-time and feel fine a decent part of of most weeks.
Happy to answer questions anyone has about my transplant and experience although I’m not 1/10 as knowledgeable as many of you about MDS!
Wishing you all well!