MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Remission

Home forums Patient Message Board Remission

Viewing 5 posts - 1 through 5 (of 5 total)
  • Author
    Posts
  • #49120
    azalin
    Participant

    Has anyone else gone from transfusions every 4-7 days all blood levels low.fir a 5 month period.. to basically a remissive state? Where all levels increase and blood transfusions stop?Just curious if this is temporary?

    • This topic was modified 2 months, 1 week ago by azalin.
    #49122
    Somenath Mitra
    Participant

    Yes i have a patient who is blood transfusion free for over 2 years now who needed a BT every 4-7 days. It was a case of failed chemotherapy. Jakavi and Thalix both had failed. A very interesting case study 😊

    #49126
    azalin
    Participant

    Can I ask what helped him stabalize? I am very interested.

    #49154
    Aureta
    Participant

    How you keep antibodies low with having that many transfusions?

    #49155
    azalin
    Participant

    Today we are 26 days transfusion free. We started essential oils and complete diet change. Some supplements… smoothie every morning made with Greek yogurt, flax seed, almond milk, frozen organic dark berries, apples, pears, avacodo, kale, chia seeds, papaya (for platelets) a different combo every day. We juice every evening carrots, celery, apples, pear. He has eliminated most processed sugars.

Viewing 5 posts - 1 through 5 (of 5 total)

Register for an account, or login to post to our message boards. Click here.

  • You must be logged in to reply to this topic.

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert