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MDS is a blood cancer
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Remission

Home forums Patient Message Board Remission

This topic contains 4 replies, has 3 voices, and was last updated by  azalin 1 week, 5 days ago.

Viewing 5 posts - 1 through 5 (of 5 total)
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  • #49120

    azalin
    Participant

    Has anyone else gone from transfusions every 4-7 days all blood levels low.fir a 5 month period.. to basically a remissive state? Where all levels increase and blood transfusions stop?Just curious if this is temporary?

    • This topic was modified 2 weeks, 4 days ago by  azalin.
    #49122

    Somenath Mitra
    Participant

    Yes i have a patient who is blood transfusion free for over 2 years now who needed a BT every 4-7 days. It was a case of failed chemotherapy. Jakavi and Thalix both had failed. A very interesting case study 😊

    #49126

    azalin
    Participant

    Can I ask what helped him stabalize? I am very interested.

    #49154

    Aureta
    Participant

    How you keep antibodies low with having that many transfusions?

    #49155

    azalin
    Participant

    Today we are 26 days transfusion free. We started essential oils and complete diet change. Some supplements… smoothie every morning made with Greek yogurt, flax seed, almond milk, frozen organic dark berries, apples, pears, avacodo, kale, chia seeds, papaya (for platelets) a different combo every day. We juice every evening carrots, celery, apples, pear. He has eliminated most processed sugars.

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