SEARCHING FOR A CLINICAL TRIAL

[Mark Bowen]

I have been diagnosed with low risk MDS-RS and Myelofibrosis. I am transfusion dependent and have had luspatercept shots but had no success. I am having a hard time finding a trial because of the dual diagnosis. Anyone out there have any advice or suggestions would be greatly appreciated.

[Anonymous]

There is an upcoming phase I/II trial studying how well Jaktinib and azacytidine work in treating patients with myelodysplastic syndromes with myelofibrosis. Giving Jaktinib and azacytidine may be an effective treatment for myelodysplastic syndromes with myelofibrosis, however, it’s important for you to seek the opinion of an MDS expert to determine if this trial, or any other trial, may be the right fit for you. It’s highly recommended that you go to an MDS Center of Excellence. You should be very carefully assessed before undergoing any treatment. Benefits versus risk analysis should be done with any treatment. Following is a link to the Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/.

[Mark Bowen]

I am very interested in this clinical trial. I have been diagnosed with MDS and Myelofibrosis since March 2021. I have only been given luspatercept injections and blood transfusions. There was no success in the shots. I have not received any other treatments but remain transfusion dependent. I am currently being seen by University of Virgina cancer center.

Thanks, Mark Bowen

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